Lillian was born with trisomy 21 and two congenital heart defects. Lily was life flighted to MUSC Shawn Jenkins when she was four days old for emergency open heart surgery. She had surgery for coarctation of the aorta. She had her second open heart surgery at seven months old for complete AV canal defect. In utero, Lily was given a 0.08% chance of survival due to excess fluid surrounding her body. She suffered cardiac arrest at nine days old, followed by a two month stay in the pcicu. Lily also has a gtube to ensure she’s getting the appropriate amount of food. Lily is now 1.5 years old and she’s doing so well! Her heart is healthy and her overall health is great. She is a warrior and we are so proud of all she’s overcome.
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